Blog entry 2: 4/25/14



Hello everyone!
We honestly don't have any earth shattering news to shout about as far as morquio goes, so we thought we'd take this opportunity to check in with you guys. We'd love to have this blog be an interactive and social place for the morquio community to get together and talk about everything and anything. So with that said, how's your week going? What have you been obsessing over lately?
We've added a comment section to the blog, so you can share your thoughts here. Your comment can be public or private if you wish.
Look forward to hearing from you!


Have a good one, and check back next week for a new blog!
Sneak peek for next week's blog:
We'll answer some of the most asked questions






Send us your Questions and Comments!





Questions or Comments:








So my wife and I just found out that our son will need surgery on his neck. It's a major procedure and just the thought of it terrifies us. My boy is only can we explain all of this to him? The last thing I want to do is scare him, but I how do you sugar coat that?

I'm just wondering what some other parents have done in this situation... Any guidance would be great.


Thanks- Concerned father


Question: Hi,


My daughter was just recently diagnosed with morquio. We just celebrated her 5th birthday, and next year she's going to start 1st grade. I'm concerned about her and how the other children will look at her. I've debated about going into her class to explain to her classmates and her teacher about her condition, but I'm not sure if I should or not. If anyone has any advice it would be greatly appreciated.




Question: Hi guys!

I'm a 22 year old woman with morquio and I've always wanted to have children. I was just wondering what are the possible risks in carrying a pregnancy to the full term.

Thank you so much!